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Abstract
Civil society and HIV/AIDS research ethics: development of a code of conduct for HIV/AIDS research to reinvigorate dialogue between north and south
J. Gahagan1, C. Worthington2, J. Nadeau1, B. Prince3
Issues: The complexity of international HIV/AIDS research indicates the need for further dialogue on the tensions between various stakeholders involved in HIV/AIDS research. This is particularly evident where researchers from the North conduct HIV/AIDS research in the South.
Description: The need for a code of coduct for HIV/AIDS research emerged through consultations with researchers, government, policy and civil society sectors in sub-Saharan Africa and Canada. The purpose of the Code of Conduct for HIV/AIDS Research Involving Civil Society is to strenghten linkages and to foster enhanced collaboration between civil society, government, policy sectors and HIV/AIDS researchers, and to increase awareness of the broad determinants of health within all sectors involved in HIV/AIDS research, policy and programming. Development of the Code of Conduct included participation of clinical, basic, epidemiological, social and behavioural HIV/AIDS researchers such that each respective research field could consider the perspectives of civil society organizations. Both e-mail feedback as well as consultative workshops were used with representatives from diverse sectors to ensure inclusion of a wide range of statekholders in the development and finalization of the Code of Conduct.
Lessons learned: Reinvigorating ongoing discussions between people living with HIV/AIDS, the research communities, government, civil society, policy and programming sectors regarding the ethical conduct of HIV/AIDS research is a crucial step toward mitigating the unintended consequences of research conducted by researchers from the North in Southern contexts. Balancing the needs of diverse partners and backgrounds in this process requires careful consideration of both research ethics issues and the broader cultural, economic and social environments within which this research occurs.
Recommendations: Ongoing dialogue is needed among various HIV/AIDS sectors to ensure that HIV/AIDS research is conducted in a manner that is in keeping with the environment and the viewpoints of communities impacted by HIV/AIDS while adhering to established ethical and research principles and practices.
AIDS 2006 - XVI International AIDS Conference
Abstract no.
MOPE0948
Suggested Citation
"J.Gahagan, et al.
Civil society and HIV/AIDS research ethics: development of a code of conduct for HIV/AIDS research to reinvigorate dialogue between north and south.
:
AIDS 2006 - XVI International AIDS Conference:
Abstract no.
MOPE0948"
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